
Understanding ME/CFS
& Strategies for Healing
Understanding ME/CFS
& Strategies for Healing
Understanding ME/CFS
& Strategies for Healing
‘ME/CFS is no more an enigmatic disease for which therapeutic concepts are missing..... there is a good chance of novel, highly efficacious drugs and even healing for this frequent and most debilitating disease. We appeal to politicians, pharmaceutical companies and stakeholders to support the rapid development of such promising new drugs.'
– Prof. Klaus Wirth & Prof. Carmen Scheibenbogen, p. 387.
Explaining the most exciting recent ME/CFS research & providing concrete steps to improve quality of life
Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) might - at last - have been explained and demystified.
Recent research has mapped out the central, interlinking mechanisms which can create an illness of exercise intolerance and post-exertional malaise. Those mechanisms include low blood volume, vascular and cardiac autoimmunity, dysfunctions in the cells and mitochondria, microclots and, in general, a reduction in blood perfusion throughout the body.
In particular, research from Germany has mapped out a convincing model for how all of these dysfunctions inter-relate and how they are likely part of one big vicious cycle. For the first time, this provides a ‘unifying model’ of what ME/CFS probably is. Aimed at a patient audience, this book offers accessible explanations of this crucial, breakthrough research by Prof. Klaus Wirth and Prof. Carmen Scheibenbogen.This book also focusses on healing strategies and solutions. This includes discussion of various conventional medical procedures and treatments as well as of:
- the Buteyko method (to improve bodily oxygenation)
- ancestral approaches to nutrition and diet (to improve gut health and energy production)
- the Perrin technique
- treatments for microclots
- the potential strengths - and limitations - of neuroplasticity interventions.
Possible future medications are also discussed, including the ‘Mitodicure’ pill. Based on the research of Wirth, this pill could become the world’s first ME/CFS-specific medication and one which could be capable of profoundly reducing the suffering of millions worldwide. It could even be a medicine which leads to recovery.
Patrick Ussher, an ME/CFS patient, weaves together the personal and theoretical in this book, unravelling the most exciting research ‘in plain English’ but also talking about his own personal experience with various treatments to improve quality of life. He also shares advice on how to construct a life of hope and meaning, despite having a chronic illness.
This is primarily intended to be a guide and handbook for ME/CFS and Long Covid patients (although it will also likely be of interest to patients with the closely related Fibromyalgia and Postural Orthostatic Tachycardia Syndrome (POTS)). It will help many sufferers understand the true physical nature of their illness and provide them with a range of healing strategies.
But most importantly, this is a book which inspires hope for a future in which ME/CFS patients are at last treated with the dignity they deserve and in ways which truly do diminish their suffering.
The book has a foreword written by Prof. Klaus Wirth in which he describes his encounter with ME/CFS, subsequent research and initial work on developing the ‘Mitodicure’ drug.About the author
Patrick Ussher has had ME/CFS for seven years. He has a YouTube channel, 'Understanding ME-CFS', in which he talks about the research into ME/CFS and Long Covid in an accessible way and in which he shares treatment strategies that he has tried.
He has also written a medical hypothesis on the potential causes of excessive thirst in ME/CFS and Long Covid and why this symptom has likely been historically misdiagnosed as 'psychogenic water drinking'. He also gives regular talks to patient groups such as The Irish ME Trust and has written for the ME/CFS blog, Health Rising, on various topics.
These talks and papers - as well as information on Patrick's other books and music - can be found on Patrick's main personal website.
PRAISE FOR THE BOOK
“In Understanding ME/CFS & Strategies for Healing, Patrick Ussher skillfully integrates a huge amount of research that at first glance looks unrelated. From it, he communicates a unique and compelling hypothesis about what is going on in ME/CFS and how to recover. Ussher supplements the science with his own personal journey of improvement and that of other patients. Understanding ME/CFS is a respectful, balanced and very readable book for both practitioners and lay readers”.
Dr. Eleanor Stein MD FRCP(C), Canadian physician with 35+ years-experience in the field and former ME/CFS patient. Online educator for ME/CFS and related illnesses.
"I have been strongly impressed by the high scientific level of Patrick’s writings on ME/CFS, particularly considering his non-medical background and the short time that he could have worked on this area. I welcome the publication of his book which seeks particularly to explain the research by myself and Prof. Scheibenbogen in an accessible way for a patient audience, as well as talking about other facets of the illness and ways to improve quality of life."
Prof. Klaus Wirth, Chief Scientific Officer of Mitodicure & Adjunct Professor in Pharmacology, Goethe University, Frankfurt (from the book's Foreword)
"I wholeheartedly recommend this book to anyone seeking to enhance their quality of life or to better understand possible pathways to improvement for conditions like ME/CFS, Long COVID, or other post-acute infection syndromes. Patrick Ussher’s work is a beacon of hope, offering both scientific understanding and tangible solutions for those in need.”
Prof. Peter Deen, Professor in Metabolic Physiology of the Radboud university, Nijmegen, The Netherlands and CEO of Streasure4Health, a start-up developing diagnostics for ME/CFS, Long Covid and Other Post-Acute Infection Syndromes
"I had many light bulb moments reading this book and would highly recommend it for those living with ME/CFS or Long Covid, their families, carers and health professionals. For those with cognitive dysfunction, the chapter summaries are also extremely helpful to refer to."
Julie Taylor, Host of The Living With Long Covid Podcast
To buy the book, you have two choices at present:
- Through all major online retailers in e-book and paperback. Click here to see options. There is also an audiobook version available from Kobo and now from Amazon Audible.
- Your local book shop should be able to order a copy for you, as the book is published through worldwide distributor IngramSpark.
CONTACT / NEWSLETTER
I welcome media enquiries (podcast, radio appearences and review copies, etc). I also love hearing from my readers. Please drop me a line.
If you wish to join my newsletter for important updates relating to this book and my ME/CFS work, please fill in the contact box but just write 'newsletter' in the message section.
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